About the Registry 

Background and Purpose

With the cooperation of families and physicians all over the world, we are collecting cases of familial childhood leukemia and other hematologic cancers. Through this accumulation of information, we hope to gain a better understanding of the origins of childhood leukemia, as well as improve our ability to provide targeted treatments. We continue to collect cases, and we ask for help in this regard from all families and all physicians.

What is the Registry?

We are a collection of physicians and scientists interested in gaining a better understanding of genetic aspects of leukemia and other hematologic cancers. Our main base of operation is the NewYork-Presbyterian Hospital/Weill Cornell Medical Center. We are entirely non-profit, interested only in fostering scientific and clinical advances.

To Enroll in the Registry

Families who want to include their child's information in the International Familial Childhood Leukemia Registry should review the For Families page on this website in order to understand the purposes of the Registry and the protection of patient privacy in use of Registry data. The family should then contact the Registry (by email or phone, see below) to request Registry consent forms, which will authorize their child's hospital and physicians to give information to the Registry.

Physicians should review the For Physicians page on the website for further information about the Registry and the Familial Leukemia study.

Who Is Eligible?

  • Anyone who has had childhood leukemia or lymphoblastic lymphoma.
  • Anyone whose family history includes a blood-relative who has had childhood leukemia or lymphoblastic lymphoma - including sisters, brothers, daughters, sons, parents, grandparents, aunts, uncles, and cousins.

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Physicians

Specialty or Expertise

Contact Us

For general inquiries and to enroll in our Familial Leukemia registry, please contact:

The International Familial Childhood Leukemia Registry (IFCLR)
Sarah M. Lo, MD, MPH
Study Principal Investigator

Phone: (212) 746-7664
Email: leukemia-registry@med.cornell.edu